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Cerebral Palsy Alliance Research Foundation logo
Cerebral Palsy Alliance Research Foundation

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  • September 5, 2018 at 12:23 am #2028

    katnadam0616
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    This is the official discussion thread for the cause Cerebral Palsy Alliance Research Foundation. Its EIN is 47-4851754 and it's a public charity based in New York, NY. Research more info about the cause on GuideStar and Charity Navigator.

    Cerebral Palsy Alliance Research Foundation logo
    We fund the world’s best research to treat, prevent, and find a cure for cerebral palsy.

    Our Purpose

    • Support research to improve therapies and interventions for people living with cerebral palsy today
    • Support high quality evidence-based research into the prevention and cure of cerebral palsy
    • Shape the direction of future research into the cure, prevention and management of cerebral palsy
    • Build careers dedicated to investigating cerebral palsy research.

    Our Strategy to Find the Answers Sooner

    Our strategy is to accelerate progress towards finding prevention and cure for cerebral palsy in our lifetime.

    We know progress is possible when research receives the funding it needs to find breakthroughs.

    In just the last decade alone when investment in cerebral palsy research significantly increased, 58% of the world’s most effective cerebral palsy interventions were discovered.

    But there is still more work that needs to be done. Over the next 3 years we will focus on supporting research in key areas that have the most potential of helping us find the answers. We aim to:

    • Fund the most promising research projects for cerebral palsy in the United States
    • Support the work of CP Registers and Surveillance Programs
    • Connect investigators to enable data sharing
    • Provide standardised data collection tools and outcome definitions to support prospective and longitudinal data collection that can be more easily shared, compared and pooled
    • Explore opportunities for collaborative research
    • Coordinate efforts to seek funding and provide seed funding as resources become available
    Also read Charitocracy's blog post about Cerebral Palsy Alliance Research Foundation!
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